Encouraging primary care and community neurology to be more person-centred
The Primary care and Community Neurology Society (P-CNS) has new steering committee members who have shaped our new vision and mission. Our vision, which acknowledges the significance of learning through lived experiences, is to provide sustainable, consistent, and high-quality care and education services that consider and support the individual needs of the person so they can live well in the community with suspected or confirmed neurological conditions.
We are delighted to be making this announcement on World Mental Health Day 2021. To meet our new steering committee members just click here, or click on the “About Us” menu and selecting steering committee.
Epilepsy in adults – lived experiences survey
Are you an adult or carer of an adult with epilepsy? If so please consider participating in an anonymous survey.
The survey is being run to learn more about the treatment and management options you, or the person you care for have been given and the day to day impact on your lives. The survey will take approximately 20 minutes to complete.Take part in the survey
The significance of emotions in delivering person-centred care
In this presentation, given at Guidelines Live in Nov 2021, you will here how the P-CNS is learning through lived experiences to support a more person-centred care approach to the deliver of neuroscience services.
Our partners at the MND Association have launched the MND Professionals’ Community of Practice (CoP). The Community is for health and social care professionals practising or interested in the field of MND care.
It is a peer-led group of health and social care professionals encouraging and supporting the development of good care for people living with, or affected by, MND.
Being an active member of the CoP could count towards your professional CPD requirement. Find out more here.
To find out more or join the Community of Practice click the link below.
Practical look at emergency neurology
Lead by P-CNS steering committee member, Dr Jonny Acheson
This session provides insight from a range of hospital specialists on neurological conditions. The learning outcomes are:
- Contrast between an urgent (acute medicine) referral and an emergency (emergency medicine) referral
- Illustrate common conditions in both Acute Medicine and Emergency Medicine including Acute Headaches including SAH, TIA and Stroke, Back pain including Cauda Equina
- Revise some hints and tips in neurological examination
- Highlight a global neurological emergency
Learning Through Lived Experiences
We invite you to visit this new section of the website, which includes details of the art of Dr Jonny Acheson, P-CNS Steering committee member, an emergency medicine doctor living with Parkinson’s
Curiate: A new learning platform
Curiate is a new online learning platform brought to you by Innervate Ltd in partnership with the Skills Network. Curiate is launching with a range of ready-made online short courses to help with your Continuing Professional Development (CPD). We have plans to create new courses as the platform grows.
All of Curiate’s short bite-sized CPD courses are interactive and engaging, and take an average of two hours to complete. All courses are auto-marked, meaning that feedback is instant, and a CPD certificate is issued to you on completion of all courses. To browse some of the courses we offer or to sign up, click the button below.
eQOL – Epilepsy Quality of Life
eQOL recognised the significance of lived experiences and has been designed for you to share information and resources to support families and individuals living through epilepsy, in the hope it will:
- Encourage discussion that helps ensure equal access to the best treatment options
- Stimulate thoughts and ideas from both healthcare professionals and patients
- Help raise awareness that people cope with epilepsy in different ways
- Provide a place where you are an equal partner in stimulating ideas for epilepsy research
NICE guideline [NG127] This guideline covers the initial assessment of symptoms& signs that might indicate a neurological condition. It helps non-specialist healthcare professionals to identify people who should be offered referral for specialist investigation.
Complex Neuro in the Community.
Managing Complex Neurological Conditions in the Community was the topic of an event we held back in 2019. To access more information about the content of the conference and to watch the talks please use the “Click Here” button.
These are information, educational tools and shared learning video guides for three common neurological conditions; headache, dizzy spells, faints and fits have been developed to support GPs in managing the majority of patients locally rather than refer them to a specialist as an outpatient.
Neuroncology: is a new project that the P-CNS is pleased to announce. Working in partnership with the International Brain Tumour Alliance (IBTA) and ACNR, we will be working to highlight the need for primary care and community based services to provide appropriate support for people living with brain tumours. Learn more about what triggered this new project on the Neurodigest website.
We have an array of resources available from our website, including videos from P-CNS neurology studies days, and presentations from a workshop on Parkinson’s lead by Dr Tom Britton and another on Headaches lead by Dr Andy Dowson. To access these plus e-brain please register and pay the one off joining fee of £45
ebrain, run by the Joint Neurosciences Council, represents the largest, most comprehensive web-based training multimedia facility in clinical neurosciences to support both training and Continuous Professional Development for those working in relevant fields. Get free access by joining the P-CNS.Click Here
Website written by a neurologist with a special interest in these problems which aims to give a better understanding of these symptoms.