Encouraging primary care and community neurology to be more person-centred
The Primary care and Community Neurology Society (P-CNS) has created a Person-Centred Neurosciences steering committee who have shaped the Society’s new vision and mission. Our vision, which acknowledges the significance of learning through lived experiences, is to provide sustainable, consistent, and high-quality care and education services that consider and support the individual needs of the person so they can live well in the community with suspected or confirmed neurological conditions.
To meet our new steering committee members just click here, or click on the “About Us” menu and selecting steering committee.Read more about this announcement
Members of the new Person-Centred Neurosciences Steering Committee have contributed to a paper that has been published one of the largest online medical education platforms in the UK, OnMedica
Our paper provides a unique window into what it’s like to hear very challenging news, written with health professionals who have had to hear the news themselves! But importantly, it also highlights how upsetting and stressful it can be for many health professionals who are having to impart that challenging news, something that some people may not have appreciated before.
We hope the messages from this paper will be brought to the attention of many people to support the voice of those who feel they haven’t been heard.Read more about this announcement
Epilepsy in adults – lived experiences survey
Are you an adult or carer of an adult with epilepsy? If so please consider participating in an anonymous survey.
The survey is being run to learn more about the treatment and management options you, or the person you care for have been given and the day to day impact on your lives. The survey will take approximately 20 minutes to complete.Take part in the survey
Practical look at emergency neurology
Lead by P-CNS steering committee member, Dr Jonny Acheson, living with Parkinson’s
This session provides insight from a range of hospital specialists on neurological conditions.
Dr Amit Mistri, Dr Neeta Patel, Dr David Eveson, Dr Martin Wiese
The significance of emotions in delivering person-centred care
In this presentation, given at Guidelines Live in Nov 2021, you will here how the P-CNS is learning through lived experiences to support a more person-centred care approach to the deliver of neuroscience services.Watch now
Help with Sleep – Top tips
Some top tips from a “Sleep Question Time” session run during the height of the COVID pandemic with a panel of healthcare professionals who offered their knowledge of sleep who bring a combination of both personal and professional experience.Watch now
eQOL – Epilepsy Quality of Life
eQOL recognised the significance of lived experiences and has been designed for you to share information and resources to support families and individuals living through epilepsy, in the hope it will:
- Encourage discussion that helps ensure equal access to the best treatment options
- Stimulate thoughts and ideas from both healthcare professionals and patients
- Help raise awareness that people cope with epilepsy in different ways
- Provide a place where you are an equal partner in stimulating ideas for epilepsy research
Curiate is an online learning platform brought to you by Innervate Ltd in partnership with the Skills Network. Curiate is launching with a range of ready-made online short courses to help with your Continuing Professional Development (CPD). All of Curiate’s short bite-sized CPD courses are interactive and engaging, and take an average of two hours to complete. All courses are auto-marked, meaning that feedback is instant, and a CPD certificate is issued to you on completion of all courses. To browse some of the courses we offer or to sign up, click the button below.Browse
Learning Through Lived Experiences
We invite you to visit this new section of the website, which includes details of the art of Dr Jonny Acheson, P-CNS Steering committee member, an emergency medicine doctor living with Parkinson’sVisit
NICE guideline [NG127] This guideline covers the initial assessment of symptoms& signs that might indicate a neurological condition. It helps non-specialist healthcare professionals to identify people who should be offered referral for specialist investigation.
Complex Neuro in the Community.
Managing Complex Neurological Conditions in the Community was the topic of an event we held back in 2019. To access more information about the content of the conference and to watch the talks please use the “Click Here” button.
These are information, educational tools and shared learning video guides for three common neurological conditions; headache, dizzy spells, faints and fits have been developed to support GPs in managing the majority of patients locally rather than refer them to a specialist as an outpatient.
We have an array of resources available from our website, including videos from P-CNS neurology studies days, and presentations from a workshop on Parkinson’s lead by Dr Tom Britton and another on Headaches lead by Dr Andy Dowson. To access these plus e-brain please register and pay the one off joining fee of £45
ebrain, run by the Joint Neurosciences Council, represents the largest, most comprehensive web-based training multimedia facility in clinical neurosciences to support both training and Continuous Professional Development for those working in relevant fields. Get free access by joining the P-CNS.Click Here
Website written by a neurologist with a special interest in these problems which aims to give a better understanding of these symptoms.