Thanks! We (@innervateUK) developed it in partnership with @communityneuro with creative input from @base8innovation. #EpilepsyAwareness. We’re now working on a new resource to support #trauma, which has come from personal encounter and living through a #braintumour experience. https://twitter.com/fionamosgrove/status/1290560168024039424
If sleep is an issue for you or your children, then do think of the The Sleep Charity. You may also find the conversation I had with @TheSleepCharity and Dr Mike Farquhar for the British Society of Lifestyle Medicine of interest. https://lnkd.in/gyqajhu
This is likely to interest quite a few across the #neurocommunity: @ACNRjournal @NeuroAlliance @NeuroSpecial @NeuroNursesAANN @NeuroNurseForum @UKCPANeuro @NENA_Neurosc @BrainandLifeMag @NeuroSpecial @neuro_penguin @BrainMind_Usyd @TheBrainCharity @Brainmind_EPFL @BIneuropsych
Please help if you can. https://twitter.com/emcapn2017/status/1288766383875076098
#qualityoflife #qol services would ensure we focus on #living no matter how long the person’s life may be. #hope
Key Activities
COVID-19 Information for the International Brain Tumour Community
The International Brain Tumour Alliance (IBTA) has assembled a list of COVID-19 links to information for our global community of patients, caregivers, healthcare and allied healthcare professionals and others.
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Living Through…..
For many, the last few months with the Coronavirus pandemic has highlighted how life can trigger various challenges, some quite traumatic.
In this short video, produced with the creative input of our Executive Director’s 13 year old son, along with the very professional voice of BBC Radio 4, Newsreader, Diana Speed, and input from patients living through a trauma, we hope it offers a perspective that can guide you through any challenging times you may encounter.
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eQOL has been designed for you to share information and resources to support families and individuals living through epilepsy, in the hope it will:
- Encourage discussion that helps ensure equal access to the best treatment options
- Stimulate thoughts and ideas from both healthcare professionals and patients
- Help raise awareness that people cope with epilepsy in different ways
- Provide a place where you are an equal partner in stimulating ideas for epilepsy research
NICE Guidelines – Suspected neurological conditions: recognition and referral
NICE guideline [NG127] This guideline covers the initial assessment of symptoms& signs that might indicate a neurological condition. It helps non-specialist healthcare professionals to identify people who should be offered referral for specialist investigation.
Managing Complex Neuro Conditions in the Community, Birmingham
This event showcased work from various services to highlight how patients with complex neurological conditions are managed in the community. Services shared their work through oral and poster presentations, which you can access.
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Neurosymptoms – video guides
These are information, educational tools and shared learning video guides for three common neurological conditions; headache, dizzy spells, faints and fits have been developed to support GPs in managing the majority of patients locally rather than refer them to a specialist as an outpatient.
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Neuroncology: is a new project that the P-CNS is pleased to announce. Working in partnership with the International Brain Tumour Alliance (IBTA) and ACNR, we will be working to highlight the need for primary care and community based services to provide appropriate support for people living with brain tumours. Learn more about what triggered this new project on the Neurodigest website.
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Resources
We have an array of resources available from our website, including videos from P-CNS neurology studies days, and presentations from a workshop on Parkinson’s lead by Dr Tom Britton and another on Headaches lead by Dr Andy Dowson. To access these plus e-brain please register and pay the one off joining fee of £45
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ebrain
ebrain, run by the Joint Neurosciences Council, represents the largest, most comprehensive web-based training multimedia facility in clinical neurosciences to support both training and Continuous Professional Development for those working in relevant fields. Get free access by joining the P-CNS.
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SYMPROVE
We are pleased to announce that Symprove Ltd, a company committed to developing the understanding of the role of the gut microbiome through extensive research and testing, has become the our latest corporate partner. Your can learn more about their interest in supporting the microbiome and research into the gut-brain connection from their new health professional website.
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Neurosymptoms – a guide to functional and dissociative neurological symptoms
Website written by a neurologist with a special interest in these problems which aims to give a better understanding of these symptoms.
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FIND US ON FACEBOOK
If you are on Facebook and want to connect with us there and share any posts that you believe our followers would find helpful, then you will find our page at https://www.facebook.com/communityneuro/
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