COVID-19 Information for the International Brain Tumour Community
The International Brain Tumour Alliance (IBTA) has assembled a list of COVID-19 links to information for our global community of patients, caregivers, healthcare and allied healthcare professionals and others. You can access that resource from here
Muscular Dystrophy UK’s Health Professionals Network is here to support professionals caring for someone living with a muscle-wasting condition. The network offer education resources for various professionals including GPs, OTs and Physios. You can access these resources from here.
NICE guideline [NG127] This guideline covers the initial assessment of symptoms& signs that might indicate a neurological condition. It helps non-specialist healthcare professionals to identify people who should be offered referral for specialist investigation. To access the guidelines click here.
SUDEP Action is the only UK charity specialised in supporting & involving people bereaved by epilepsy. We are dedicated to raising awareness of epilepsy risks and tackling epilepsy deaths, including Sudden Unexpected Death in Epilepsy (SUDEP). Click here for our general leaflet. We also have a well-established track record ofdelivering training on SUDEP Awareness to GPs, nurses, pathologists and professional carers. We provide a number of free tools for Clinicians who support people with epilepsy such as our award-winning SUDEP & Seizure Safety Checklist, and the patient app EpSMon.
Different Strokes is run by younger stroke survivors for younger stroke survivors. We have personal experience of the realities of life after stroke.
We recognise that the Different Strokes community of younger stroke survivors and family members are the experts in stroke recovery and rehabilitation with first-hand knowledge of the issues and challenges facing families after stroke.
This website is about symptoms which are neurological, REAL (and not imagined) and due to a problem with the functioning of the nervous system and not due to any identifiable neurological disease.
This report presents the findings and recommendations from the final stage of the Inquiry’s work, which has focused on mental health promotion in later life.
We are an umbrella Community Group for the neurological charities/ support groups active in Medway, Kent, UK.
The Network is actively developing creative ideas to support people living with neurological conditions and this includes their neurocafe, which you can learn about from here.
This website aims to enhance the management of neurological conditions in the community by providing high quality educational opportunities and completing high quality research.
The Master of Science in Professional Practice (Stroke Care) programme offers a range of courses to support clinicians in providing effective and appropriate stroke care and services. This course meets a need for stroke-specific education identified by stroke clinicians.
The UK MS Specialist Nurse Association is the professional organisation for MS Specialist Nurses and other health and social care professionals with an interest in MS.
The National Society for Epilepsy’s mission is to enhance the quality of life of people affected by epilepsy, by promoting research, education and public awareness and by delivering specialist medical care and support services.
The Transverse Myelitis Society supports people living with Transverse Myelitis (TM), Acute Disseminated Encephalomyelitis (ADEM), and Neuromyelitis Optica (NMO), and their carers/family. Also see the Royal National Orthopaedic Hospital link at the bottom of this page for an additional resource
Hypnotherapy Directory was set up by a team who know how difficult it can be to find the support you need when tackling a personal problem. Through their own experiences, the learnt just how important it is to find relevant information to help people to navigate their options.
Other Useful Links
NICE Guideline – Suspected Neurological Conditions
Making the Move to Assisted Living
Senior Health Resources
Resources for Aging in Place
Moving Tips for Seniors
Guide to Senior Nutrition
Financial Resources for Seniors
Veterans Benefits for Seniors
Legal Planning for Alzheimer’s and Dementia
NICE Guideline – Dravet syndrome – cannabidiol [ID1211]
NICE Guideline – Lennox-Gastaut syndrome – cannabidiol [ID1308]
Occupational therapy for people with Parkinson’s