Muscular Dystrophy UK’s Health Professionals Network

Muscular Dystrophy UK’s Health Professionals Network is here to support professionals caring for someone living with a muscle-wasting condition. The network offer education resources for various professionals including GPs, OTs and Physios. You can access these resources from here.

SUDEP Action

SUDEP Action is the only UK charity specialised in supporting & involving people bereaved by epilepsy. We are dedicated to raising awareness of epilepsy risks and tackling epilepsy deaths, including Sudden Unexpected Death in Epilepsy (SUDEP). Click here for our general leaflet. We also have a well-established track record ofdelivering training on SUDEP Awareness to GPs, nurses, pathologists and professional carers. We provide a number of free tools for Clinicians who support people with epilepsy such as our award-winning SUDEP & Seizure Safety Checklist, and the patient app EpSMon.

Lewy Body Society

Our purpose is to fund research into Dementia with Lewy Bodies (DLB). We also hope to provide a community focus for those who suffer from DLB along with their carers and families.

Parkinson’s UK Excellence Network

The UK Parkinson’s Excellence Network brings together health and social care professionals to transform care for people affected by Parkinson’s. Resources available from here

The Pain Web

A directory of websites for health professionals dealing in research, assessment and treatment of pain

The Commissioning Toolkit for Long Term Conditions.

This site brings together information and resources to help care professionals commission more effective patient-centered services

Neurosymptoms

This website is about symptoms which are neurological, REAL (and not imagined) and due to a problem with the functioning of the nervous system and not due to any identifiable neurological disease.

Learning about Intellectual Disabilities and Health – Epilepsy

Web-based learning resource for medical and health care students and practitioners.

Mental Health Report – Promoting mental health and well-being in later life

This report presents the findings and recommendations from the final stage of the Inquiry’s work, which has focused on mental health promotion in later life.

Neuroeducation Website

This website aims to enhance the management of neurological conditions in the community by providing high quality educational opportunities and completing high quality research.

Pain Talk Website 

The national discussion forum and community for UK healthcare professionals with an interest in acute, chronic or palliative pain management.

MSc in Professional Practice (Stroke) 

The Master of Science in Professional Practice (Stroke Care) programme offers a range of courses to support clinicians in providing effective and appropriate stroke care and services. This course meets a need for stroke-specific education identified by stroke clinicians.

Atlas of MS Database

The Atlas of MS database currently contains information and data from 60 countries.

UK MS Specialist Nurse Association

The UK MS Specialist Nurse Association is the professional organisation for MS Specialist Nurses and other health and social care professionals with an interest in MS.

The National Society for Epilepsy

The National Society for Epilepsy’s mission is to enhance the quality of life of people affected by epilepsy, by promoting research, education and public awareness and by delivering specialist medical care and support services.

The Huntington’s Disease Association

The HDA supports people with Huntington’s disease, their friends and family and also the professionals who work with them.

Therapists in MS

Therapists in MS is an initiative which brings together allied health professionals who share a special interest in Multiple Sclerosis.

Tourettes Action

Tourettes Action is a charity devoted to people with Tourettes Syndrome and their families

Transverse Myelitis Society

The Transverse Myelitis Society supports people living with Transverse Myelitis (TM), Acute Disseminated Encephalomyelitis (ADEM), and Neuromyelitis Optica (NMO), and their carers/family. Also see the Royal National Orthopaedic Hospital link at the bottom of this page for an additional resource

Spinal Cord Injury-Medical Management

Comprehensive resource to support the medical management of SCI

US Neuro-anatomy resource 

A collection of learning resources collated from the US to support medical assistants. Resources include videos, articles and slide shows

Hypnotherapy Directory – focus on pain

Hypnotherapy Directory was set up by a team who know how difficult it can be to find the support you need when tackling a personal problem. Through their own experiences, the learnt just how important it is to find relevant information to help people to navigate their options.